I wanted to take the time to share something personal with all of you. I don’t really want this blog to become about this, but I felt that sharing this may be a good way to connect to all of you, my readers. I also feel a lot of issues in life are created by trying to hide the things society tells us we should be embarrassed or ashamed of, so I try and be very open about things in my life. I am not going to try and educate anyone here, but if after reading you have questions, feel free to ask.
So you may over time begin to notice there may be stretches of days or weeks where I post less here and on Facebook, if you follow me there. I have some prominent health issues in my life that really wreck havoc at times. Its a pretty long list, so I figured I would share the basic ones that create the most problems for me.
I suffer from Fibromyalgia. While there are many components and sub-illnesses involved with fibromyalgia, I think the picture below does a decent job of showing the major symptoms involved.
Most, but not all, of my fibromyalgia symptoms are bigger issues in the winter. So it is far more likely that you will notice absences in the winter months, especially if it is an exceptionally cold winter.
I also have chronic fatigue syndrome. Often, but not always, chronic fatigue can go hand in hand with fibromyalgia. Its pretty common that if someone has one they also have the other. Here is another graphic that is pretty decent at summing up the basics of chronic fatigue.
Chronic fatigue keeps me feeling as though I can not accomplish a lot in a day. I become exhausted very easy, and simple task are so hard.
I also have a ruptured disk at L5/S1. Which in turn causes sciatica. Sciatica is pain and burning sensations radiating from the sciatic nerve, which is pictured below.
There is more, but I don’t want to scare anyone with my list of health issues. The biggest change in my life after all the years of dealing with all this is not being able to be active to the degree I use to be. When I was younger, before my health problems began, I was extremely active. I loved to hike, camp, dance, and travel often. I can’t camp anymore at all, and the other things I am very limited in how and when I can do them. While I was never
Fashion is a great way for me to make myself feel better at times. After having a bought of not being able to do much, it is a relief to get dressed and feel normal as much as possible. This is a bit of a double edged sword though. Since most of my illnesses are considered invisible illnesses people often don’t realize there is anything wrong with me, and inadvertently people say things that can be frustrating or hurtful. In some ways its like being plus size. I mean, as a plus size woman, we often hear things like “your pretty for a big girl”, “you would looks even better when you lose some weight”, or “you know being your weight you will probably have a heart attack”. Similarly when you have an invisible illness you hear “if you would just try this (insert pill, exercise, or product that is the latest craze here) you would feel so much better”, “your just making excuses so you don’t have to (insert activity here)”, or “but you don’t look sick”. No matter where its coming from, most people have good intentions and think they are helping, but of course there are always those few that don’t.
People so often speak before thinking. All those people who think that my health is because of my weight are so wrong. My weight is because of my illness. There are so many reasons why anyone could gain weight. And none of them are anyone’s business but your own. All those test the doctors always like to run when you are overweight, because they are so sure you are going to have diabetes, high blood pressure, or high cholesterol. I had to go through so many doctors before I found one that got it. My test always come back well within normal range, sometimes better than my very skinny doctor.
If any of you are dealing with some of the same types of issues, I would love to hear your experiences. Post a comment below, or post on Facebook.